New leg pain

7 posts in this topic

Posted

I hear several people say they have a new prosthetic leg, and they are in a lot of pain trying to walk.

The best advice I ever heard was from my own prosthetist, who told me a first time prosthetic leg SHOULD NOT HURT!   A small amount of discomfort is to be expected, but REAL PAIN MEANS SOMETHING IS WRONG.

Now, a liner sock that fits over the liner can make a great impact via a better fit, but outside of that, if you are having pain, you MUST return to your prosthetist and have them adjust your new leg.   A simple adjustment can make all the difference in the world, and it is not uncommon to need to visit your prosthetist every week for a while until you get a good fit.  Plus over time as your stump shrinks you will not only need adjustments, but even a whole new leg.  Pain is a no no and means your can be damaging your stump, so if you experience pain, see your prosthetist.

-Bob

1 person likes this

Share this post


Link to post
Share on other sites

Posted

That's for sure! I'm sure my prosthetist is sorry that he told me to call him every time I have pain!  He's doing his best to make this work but I've had my prosthetic for two months and it still hurts. Then I get this really weird pain, something new and bad, a couple of days ago so I "ran" to the doc....dammit, I have an infection! Not sure if it's a tissue or none infection so I have to an infectious disease specialist. No wearing the prosthetic until this is solved so I'm back to one-leg hopping with my walker. YUKKO!!!!

Share this post


Link to post
Share on other sites

Posted

I've had my trial prosthesis about a month & 1/2. A couple of weeks ago, the knee was changed out to a c-leg, which is a loaner until they've received preapproval from my insurance. I've been going to PT. I'm on my 2nd PT clinic, because the first one I had wasn't familiar with amps, didn't listen to me, and wasn't concerned with my goals. I've seen the new therapist for about 3 weeks now and he is awesome, teaching me balance exercises, have reduced an 18 degree contracture to neutral and doing crutch walking. I am a rehab nurse, and have experience with amps, so I have a pretty good idea of what PT should offer. I have been doing some crutch walking at home. Thursday, I used crutches to walk from my house to the truck, from the truck into and out of the PT facility, and back from the truck to the house. I haven't driven since my AKA amp almost 4 months ago, and I miss the independence, miss driving my Jeep and just detest having to depend upon others. My brother has been driving me to appointments. My plan is to be driving by Sunday next week and go to church (on crutches) for the first time in months.

Share this post


Link to post
Share on other sites

Posted

The prosthetic device should never cause pain. I call my leg guy frequently and he works diligently and patiently with me to get things where they need to be. I also see a Physical Medicine doctor at The University of Pittsburgh who specializes in amputees and oversee that everything goes as it should and that I have the best prosthetic products to meet my needs. This doctor works in concert with my leg guy and someone from the prosthetic company I use is always at every appointment and therapy session to make sure I have the most comfortable fit and proper adjustments.

1 person likes this

Share this post


Link to post
Share on other sites

Posted

Just wanted to add that rehab is a team approach. Your MD, Pain Specialist, Prothestist and Therapist should be advocating for you.  Pick the best team possible, and don't be afraid to speak your mind and let them  know your goals. I did change therapists because my original one did not have my best interests in mind. Had I stuck with her, I am sure that I would still be walking with the walker.

Share this post


Link to post
Share on other sites

Posted

I lost my leg July 2014 I never had bad nerve or phantom pain till June 2015. Now I have terrible pai on the inside lower part of stump close to incisive line and Boeing cut. It is getting more frequent and worse every day. It hurts much worse with leg off. Walking actually helps. But at night in bed it's horrific. I basically cry half the night. I can't take lyrics. Can any one help please!

Share this post


Link to post
Share on other sites

Posted

I don't know why people do this.....have terrible pain, spend days crying, and DON'T SEE THERE DOCTOR?  If you are having bad pain and your prosthetist can't help with limb adjustments GO SEE YOUR DOCTOR....HE IS THE EXPERT! and if your doctor cannot help, find a doctor in your area who is a pain specialist.  I see a pain specialist for my back. He has tried many things....spine shots, electronic stimulation units (tens), etc and nothing worked so he tried various medications until now I am on a combination of percoset and Neurontin (for phantom pain) AND THAT WORKS!  Realizing that percoset is addicting, I am VERY mindful to limit my dose to what he prescribed three years ago (3-pills a day 10/325mg percoset)....I do not get a buzz off of that, yet it relieves about 90% of my back pain and most phantom pain.   I do start to get withdrawal pain//symptoms if I forget and am late on a pill, but that is just something you learn to live with.  I also know that marijuana works 100% as a pain blocker including phantom pain, but since growing even one plant is a felony in my state (Alabama) I am skipping that alternative and working to try and change my states laws.

1 person likes this

Share this post


Link to post
Share on other sites
You are commenting as a guest. If you have an account, please sign in.